You’re more than a diagnosis
Trusted information, peer support and a community that understands—supporting people with MRKH, their loved ones and healthcare professionals.
Find the right information for you
Every MRKH journey is different, and so are the questions, challenges and decisions that come with it. Whether you're looking for trusted information, connection with others, guidance for supporting a loved one or clinical resources, we're here to help you find what you need.
People with MRKH
Whether you've recently been diagnosed or have been living with MRKH for years, access trusted information, practical resources and support for every stage of your journey.
Connect with Community
Connect with people who understand through peer support, online groups, local events and shared lived experiences. You don't have to navigate MRKH alone.
Healthcare Professionals
Access evidence-informed resources and educational materials to support compassionate, trauma-informed care for people with MRKH.
Friends & Family
Support someone with MRKH with confidence. Find trusted information and practical guidance to better understand their experience and how you can help.
RESOURCE HUB
Trusted answers.
Practical guidance.
Every stage of the journey.
Whether you've just been diagnosed, are exploring treatment options, supporting someone you love or simply looking for reliable answers, our Resource Hub brings together carefully curated articles, videos, downloadable guides, research and practical resources from respected Australian and international organisations—all in one place. So you can spend less time searching and more time finding the answers that matter most.
✔ Diagnosis & Health
✔ Relationships & Intimacy
✔ Fertility & Parenthood
✔ Communication & Disclosure
✔ Research Library
✔ Fact Sheets
✔ Resources for Families & Professionals
COMMUNITY
Support begins with information.
Healing happens in community.
Connection can be life-changing. Whether you've recently been diagnosed, have been living with MRKH for years or are supporting someone you love, everyone deserves to feel seen, understood and supported. That's why we've created opportunities for people with MRKH, their families and supporters to connect in welcoming, trauma-informed spaces. Through peer support, local catch-ups, online events and our annual conference, we're building a stronger, more connected MRKH community—one conversation at a time.
Annual Conference
More than a conference, it's a community coming together. Our annual conference brings together people with MRKH, loved ones and healthcare professionals for a day of trusted information, meaningful connection, lived experience and hope. Leave feeling informed, supported and reminded that you never have to navigate MRKH alone.
Local Catch Ups
Meet others in your area for relaxed, informal gatherings where genuine connections can grow. Whether it's your first time or you're reconnecting with familiar faces, everyone is welcome.
Peer Support
Sometimes the most meaningful support comes from someone who simply understands. Our peer support groups create a safe space to connect, share experiences and remind each other that no one has to navigate MRKH alone.
Established 2020
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Life Changing Connections
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Trusted Worldwide
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Community Led and Funded
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Annual National Conference
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Community-led. Evidence-informed. Trauma-informed.
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Established 2020 ✦ Life Changing Connections ✦ Trusted Worldwide ✦ Community Led and Funded ✦ Annual National Conference ✦ Community-led. Evidence-informed. Trauma-informed. ✦
Every resource we create, event we host and conversation we inspire is driven by one simple belief: no one should have to navigate MRKH alone. Together with our community, volunteers, healthcare professionals and partners, we're creating greater awareness, strengthening connections and helping shape a future where everyone affected by MRKH feels informed, supported and empowered.
Our work extends far beyond providing information. We educate, connect, advocate and collaborate to create meaningful change for people affected by MRKH. Together with our community, volunteers, healthcare professionals and partners, we're building a future where everyone can access trusted support, feel understood and know they never have to navigate MRKH alone.
Supporting the MRKH community in every way we can.
HOW WE CREATE CHANGE
EDUCATE
CONNECT
COLLABORATE
Creating Connection. Inspiring Change.
Creating trusted, evidence-informed resources that empower informed decisions.
Bringing people together through peer support, local communities and shared experiences.
Working alongside Australian and international organisations to strengthen support, share knowledge and advance best practice in MRKH care.
PARTNER
ADVOCATE
GATHER
Partnering with healthcare professionals to improve awareness, education and compassionate care.
Amplifying lived experience to create understanding and influence positive change.
Creating welcoming spaces where our community can learn, connect and feel they belong.
Everything we do is grounded in connection, compassion and lived experience.
SUPPORT OUR WORK
Be a part of someone’s story.
Help create a future where no one faces MRKH alone.
"Finding MRKH Australia was the moment I stopped believing I had to do this alone."
- Community member
Everything we do is powered by our community. MRKH Australia receives no ongoing government funding—we are a community-funded charity, sustained by people who believe everyone affected by MRKH deserves trusted information, meaningful connection and compassionate support.
Your donation helps us create resources, deliver peer support, educate healthcare professionals, advocate for better care and bring our community together through life-changing programs and events. Every contribution, no matter the size, helps ensure no one has to navigate MRKH alone.
MRKH Australia is a registered Deductible Gift Recipient (DGR), so donations of $2 or more are tax deductible in Australia.
Every dollar helps ensure no one has to navigate MRKH alone.
“Connecting with other women with MRKH and their families is very inspiring and a confirmation that I’m not alone in this.”
MRKH Australia Community Member
Learn more about our events and opportunities for connection.
